It is plastic/rubbery and it does not hurt her which is the most important thing. It is supposed to ideally sit flush with her belly, but the channel to her colon does not go straight back, it sort of angles to the right, so therefore the stopper can't sit flush! So we place it in her belly after we flush and then I just make sure there is a 2x2 on top of it, to soak up some drainage, and then we wrap her belly. Some of you may know about the cath strap, it is typically used on someones leg if they have a catheter in, but in our case we just use it on Jaya's belly cause it velcros and it holds in the stopper!
I am learning so much every day and wishing I would have known half the stuff I know now, a couple of years ago - but thats okay!
I have been chatting on some spina bifida chat rooms, especially when we were thinking about MACE, and the moms on there have been super helpful and it is nice to have other people to talk to who understand what we go through, so if any of you SB moms are reading this and are considering MACE for your child at some point - we have bad days but none can compare to what we dealt with before...this surgery has been amazing and has given her much more self confidence!!! I know the feeling of not wanting your child to endure one more surgery especially if you have been in the hospital time after time, but this is one that I am so glad we opted to do...it was hard while we were there and it was difficult at home and honestly still is on certain days, but she can be okay going to K and not having 7-10 accidents a day! All surgeries are hard, but the benefits of this def out way anything else!
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